Noah Harrison Wilson was born on the 26th of August 2025. When Noah came into the world, he had problems breathing on his own and was transferred to Addenbrooke's NICU, where after many tests, scans and an MRI the doctors found he had a rare muscular and respiratory disease called Titinopathy — a condition that meant he could not manage to breathe or feed on his own, and he was on constant machines to help him.
Noah gave everything he had. He fought with a strength that words will never fully hold. But on the 1st of October 2025, he sadly lost his battle.
We started this foundation to bring awareness to the fact that this disease can easily be detected early.
Throughout her pregnancy, Noah's mother reported to the hospital and doctors that there was something wrong — that she was concerned about Noah's lack of activity in the womb, and this should have prompted the hospital and doctors to run the required tests. Instead, she was constantly told there was nothing wrong, and repeatedly sent home.
We are trying to raise awareness so expectant mothers know they should — and can — insist on having tests if they feel something is wrong, or their baby is not moving or responding as they should. Giving parents and family members time to understand, prepare, and make informed choices.
All profits from future G.U.B.P. events will help Titinopathy Awareness and Addenbrooke's NICU via Noah's Gift Foundation.
Please show your support where you can to help us get this message out — follow G.U.B.P. on social media, compete in future events, come and spectate, purchase some merchandise. Everything and anything will be greatly appreciated.
Together we can make a difference.
#StrengthUnited