Our Story
The foundation helps raise awareness of Titinopathy — a rare muscular and respiratory disease that took our angel Noah from us at 36 days old. In his memory, we work so that other parents can be heard, tested, and supported in time.
Our Foundation
Born from love. Built on hope.
A promise written in his name.
Noah's Gift Foundation exists to ensure that the brief, brave life of Noah Harrison Wilson continues to protect and serve families everywhere.
"All we ever wanted was time."
Why we exist
A foundation born in 36 days.
Our Vision
To grow the foundation, work hand-in-hand with hospitals and organisations, and build a future where Titinopathy is understood, screened for, and never dismissed.
Our Mission
To raise funds and awareness that save families from the devastating loss we endured — and to honour every parent who has had to whisper goodbye too soon.
Our Goals
To support Titinopathy research, Addenbrooke's NICU, and every expectant mother who deserves to be heard, screened, and believed.
36
Days of courage
1 in 3,500
Births affected globally
100%
Of profits to the cause
∞
Love carried forward
"All profits from future G.U.B.P. events will help Titinopathy Awareness and Addenbrooke's NICU via Noah's Gift Foundation."
#StrengthUnited
Carry his name forward
Stand with us